Katie is a sweet, happy 9-year-old who was born with CHARGE Syndrome, a rare genetic condition that affects hearing, sight, balance, feeding, sleep, the heart, and many other functions. Katie has had 10 surgeries to date, as well as countless doctor and therapy visits. She continues to amaze us with her fun-loving personality, determination, and progress. We hope you enjoy our stories here. Feel free to post comments--we enjoy hearing from everyone!
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